Filed under: Elective Mutism, Selective Mutism, Shy, anxiety, self healing, shyness | Tags: anxiety, Elective Mutism, family, Selective Mutism, selective mutism advice for teachers, self healing, shyness
I have seen recently searches to get to my blog, the search string is ” selective mutism disorder blog”. My concern is the word disorder, puts such a negative outcome adn on the present condition and what that means to others. Selective mutism may be a condition, but not a disorder to me, this tags it as something bad and wrong. It is not and it just is happening to many children, including my son who overcame the condition. I am not sure this is the best way to phrase it.
Perhaps unenlightened doctors or teachers think of it that way and it may be the correct medical term, but I don’t like the labeling. I am sure a parent would not. It is happening to their child and they desperately want to find a way to have it get resolved, to getcured or what ever it takes to make this condition go away.
Disorder places these children with lower learning students and this is not the case, they are most likely highly gifted. If kept, placed or trapped in the system, they will loose their edge. Yes it is harder to teach and interact, but never give up, do not allow them to be placed in lower learning and behavioural classroom and do not allow this labeling of Selective Mutism.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: child with selective mutism, group sports for a child with selective mutism, overcoming selective mutism, sel, selective mustism, Selective Mutism, selective mutism advice for teachers, sport and selective mustim, teaching a child with selective mustim, team sports with a child with selective mutism
I got a question from a reader that asked: If I recommended group sports for my child who had selective mutism. The answer for my child was Yes. I did enroll him in group sports. Some group sports where better to try than others, for a child with selective mutism. He did not speak at school, so as long as the children that he associated with at school did not participate, he spoke, if they were they were on this team he did not speak. Selective mustim has a strange line of speaking and non speaking. The coach was also part of the equation, a loud coach, he would not talk, a soft spoken coach, he would.
We tried all sorts of sports group and not group, in hopes it it would cause a break through with this speech. It did not, but he liked doing the activity.
Group sports where he was on a team and running in a group worked well. Soccer was our first try. He got lost in the group. Tag football, he loved it. Baseball, not so much. He could not handle the spotlight of him stepping up to the plate and swinging. Basketball was a good choice. He never yelled to get the ball. Lots of arm waving. Swimming not so much, same issue of the starting line focus was too much for him. Running, did not like it, he was fast but could not handle when he lost.
So all in all. See what your child is comfortable with. We started many seasons and did not finish. Others were great and he stayed all season and he grew a lot for having the experience.
Filed under: Elective Mutism, Gifted, IEP, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: Elective Mutism, health, Selective Mutism, selective mutism advice for teachers, selectively mute, Shy
I am always to grateful to see how our families story with selective mutism is helping other families. I noticed that I have a lot more teachers coming to the site looking for advice for teaching a student with selective mutism. It seem more and more common these days. Here is what I wished I had known and been able to tell teachers of how to interact with a selective mute child.
So here is my top 10 for teachers.
1: Believe the parents when they tell you the child has the condition. It was so important to have people who were helping, than those who were convinced it was something else.
2: Try many options. Try parallel play. Take a speaking child who does not care if the child does not speak and let them play side by side. Do not try to have them interact, that is too stressful for the selectively mute child. Patterning play side by side seemed to work well for my son.
3: Have lots of play dough or things for the child who is mute to interact with. My son played with play dough every day for hours. It made him happy. He was listening to everything going on around him, including teacher class lesson, but was not able to sit and do regular sit and be taught process. He would tell me what the teacher said that day when he came home. The teacher was always surprised to hear how much he had retained, since she thought he was just over in a corner playing with play dough and was not paying any attention to her.
4: Tell the child that you know they are answering you, just in their head. My son actually told me he answered every question, just in his head. So do not assume they are incapable of answering you or they are not paying attention.
5: Try having them write out or act or signal out what they want. My son would do anything you asked him to except he was unable to speak in the school setting. So don’t give up assuming they can’t and won’t. There were certain words even with me he could not say, so he would spell the word instead of saying the word or use another word. We learned what his signal was for “I am uncomfortable”, for him it was that he would pull on his eye lid. This gave us, teacher included, a heads up and was able to take steps to lessen the stress of the situation for him. Be sure to tell them in advance, if there is going to be a change of routine. Don’t spring things on these children, they do not adapt well. Such as a change of teacher, sub, going to another room for testing. He would retreat even more, if changes were not told to him in advance. I would have the teacher every morning, go through the day, verbally with him. If the teacher was going to not be there, I would tell him in the car and outline the day. If he was told in advance he was fine, if not it was a terrible upsetting day for him.
6: Find out if and when the child will speak, my son could speak very well when in the house. So I would take the work each day from the teacher and do it with him verbally, so it would be reinforced.
7; Don’t assume the child is developmentally delayed or autistic. Actually, most are very to highly gifted. Remember Einstein did not speak until he was five. That statement kept me going for many years when he had the condition.
8; The condition can and will go away in most cases or at least diminish. Give it time, it is on their clock as to when this will change and not yours. It can take many years. So don’t think you are going to “cure” them.
9: The selectively mute child hears everything you say, so careful what you say and to whom you say it to. Do not talk in front of the child as though they are not there, they are not deaf.
10: Recommend the child be placed on a 504 plan/ IEP and be tested for gifted and explain to the parents the advantages and disadvantages. These children need more exposure, not less. This was not done for my son and I wish it had. We have one now for my older son with Tourette even in High school, he is an honor student, but still needs accommodation and services to support.
10/09 update: I want to add a clarification to being put on an 504 / IEP. This does not mean pull the selective mute child from classroom and put in a class with lower learning identified. This means making accommodations in a main stream classroom and higher. These students need more and faster, not less and slower. As soon as we got the gifted designation, we had him moved to classes for the gifted on subjects they offered it in and then he went back to a regular class for all other subjects. This gifted class worked well since it was a smaller class number and he was being taught at an appropriate level.
That was always a battle with the school, since they only taught one year above class level even in a gifted level. They indicated that the class curriculum strings were wider for the gifted program and thus covered the extent they needed to under the law. My point was teach to his level, not to the minimum you are required to do for gifted students. That is why I looking back I should of put him on an IEP/ 504. To force the school to educate him as needed, not as they wanted.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: alternative medicine, elective mustim, family, health, Selective Mutism, self healing, Shy
I have written this blog to chronicle for others the paths we took with our son who had Selective Mutism, it starts at the bottom of the posts and reads up. I have recently asked my son of what he remembers about the condition and would he remember at all that he was selectively mute?
It turns out he does remember and he remembers it in pieces, but not all pieces. He remembers not talking in school, but not that we took him to a psychologist. He remembers that we tried a lot of things, but is not sure what we did. He remembers teachers coming to visit at the house, but he did not remember that we had a family member who was a school teacher come to observe him in the classroom setting. It is a real patch work of memories.
I also came across a picture of him with other students in his preschool the other day and the blank look on his face was clearly there, and he was participating by hitting a pinata. This was so typical of a selectively mute child to participate but in silence. His face changed dramatically from happy engaged child driving to school to a blank expressionless zombie face every day he was in pre school.
He remembers it as the way he was, he remembers clearly when the mutism broke. He remembers when the things broke on the table and from that time on he could speak.
I will ask him to chronicle it from his remembrance when he is older. Someday I will ask him to add to the blog. But at the moment he is not looking back and his future is very bright. He already in jr. high knows he wants to go to college at Standford or Harvard and we know he has the will, the brains and the voice to get there.
When I started this blog I never imagined it would have as many who seek it out or that I would have so much to tell on the subject.
So yes we did remind our son that he had selective mutism and he was not bothered in the least.
Be sure to start at the beginning of the Archives in Feb and read forward by month to get the full picture of selective mutism, what happened and how it was overcome.
Archives
- May 2008 (4)
- April 2008 (5)
- March 2008 (17)
- February 2008 (8)
Filed under: Elective Mutism, Gifted, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: Elective Mutism, family, health, Selective Mutism, self healing
A reader of my blog asked the following questions, that several of you asked about.
Her comment was: How old was your son at the time of this testing? I believe with all my heart that my daughter is gifted as well as having the selective mutism (along with some SPD issues). She’s only 4.5 and has started reading without real prompting. She’d hit the ceiling the non-verbal portions on a kindergarten readiness test (The McCarthy Scales of Children’s abilities), which is considered a bridge between developmental and IQ tests. She has a language comprehension of a 7 year old. I don’t know how well she did on the visual-spatial parts, but I think she did quite well. I’ll know for sure next week.
I feel that a gifted with an IEP designation will be the way to go, and seeing how it worked out for you confirms the idea that I need to push for it.
But one question remains – how did your son test so well on the private test, but not well on the school’s test? What did the private tester do differently?
My reply: My son was 7 when after three years of trying to figuring it out and being tuned down and not passing 3 years of the school version of gifted testing, did we have him tested outside. I think the second grade is a good time, since at that point he gap between this advancement and the teaching level, left us no choice. His second grade teacher called saying after 6 weeks from the start of school to tell us that he was done with second grade and what did we want to do with him? Now we had had that happen also in first grade, but at least it was after the xmas break. My answer was teach him at his level. That was not met with agreement. Thus the outside testing was our only option left, besides leaving the school and that crossed my mind many times.
The private testing is done on to one, not in a group setting. It is not in a school setting, this is very good for children with selective mustim like mine who may not be able to speak at school or have anxiety issues around school setting or children from the school.
Filed under: Elective Mutism, Gifted, IEP, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: anxiety, family, Gifted, health, IEP, selective mustim, Shy
The next day with gifted letter in hand, I cautiously went to drop it off at the principals office. Since I had already had many meetings that were fruitless with her, I was sceptical, but hopeful. I handled the letter stating he was designated gifted and she looked at it and said, OK we will have him moved into the gifted class tomorrow and your will have a IEP written and to you within the week.
It was so sweet music to my ears, after all the years of no’s, all the …we will not move him, we cannot move him, we will do nothing more. To hear yes…. and with action steps. The hours and hours, the meetings and the delays were finally worth it.
The parents who told me to think of the gifted and IEP designation as Ruby Red slippers was correct. It was exactly what he needed. He moved classes and he did great. He did more than great, he thrived instead of dying under a system of bureaucracy. A system that is focused on no child left behind, was failing since they were leaving my child behind and it did not seem to phase them, since he was above grade level they felt it was not needed. He was smart, he just had anxiety and had selective mutism in his younger years.
The question was, once he spoke at school, if we should push him up to higher class in the same grade level and would he revert? It was what we thought he needed, not what the school policy was. We were right, our gut was right. We did act and give him the chance to succeed and we did push and it was worth it for him. Trust your gut when it comes to your child.
The push was the right move. The expense was worth it. He was pulled out for reading and math and non verbal and continued in his regular class room. He was still way above grade level. There was a gifted only school in the district, that they suggested we look at sending him to. We felt it was better to have him be socially comfortable. This also proved for him to be the best combination. Once you have the designation, you stay the program, unless the grades or behavior deems that they will not place them the next year. He was placed in the gifted program every year. The Gifted IEP that was written with accommodations made all the difference.
It was suggested that he skip a grade and be moved up a grade to be taught at that grade level. We rejected that as an option, since he needed to be with his own age group for social aspects.
Filed under: Elective Mutism, Gifted, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: anxiety, family, Gifted, Gifted testing, health, outside testing for gifted, Selective Mutism, Shy
We finally decided the only thing left to do and not loose another year was to have him tested privately for gifted designation. It was very expensive, over $1200. We reluctantly asked my parents for the funds to have him tested, since this could of turned out to be spending good money and a lot of it and not have him qualify for gifted. After all that we had been through and all the dollars we had already spent on the paths with selective mutism, it was a risk we needed to take.
I learned there are three areas that a child can be tested designated gifted and each one qualifies for different services. The first is verbal. ( Reading ) Second is quantitative, (math), the third is non verbal, (spacial). The leap for our state was an 97% or higher to qualify in on any of three areas. Under 97% you do not qualify. This means that he needed to pass the test in the top 3 percent, he could be designated in all three, only two or just one.
We asked around and found several councilors that would give the tests, some at the university and some centers that treated conditions such as ADD and also tested for gifted. I also had to figure out how many of the test they were qualified to give, if the state would recognized their administering of the test and it turned out to be that only one that fit all my criteria and could take us within a short time frame. Many of these centers where booked up for 6 months or longer.
The councilor was a Phd and wisely insisted on a couple of session with my son and one with my husband and myself before administering the test. She openly told us, that since he did not pass the schools gifted test that she say many that had to do what we did and have him tested privately. There was no guarantee he would pass or qualify.
He went into the room to take the tests, it was 2 hours before he returned. We where told he has passed in both verbal and quantitative. There was a great deal of satisfaction to know we where correct all a long. To have it validated was so gratifying. It made all the barriers, and all the brush offs fade away. We knew he was gifted, we just could not get the school to agree and make the correct decisions, they were so clouded due to his past selective mutism issues and would not do anything without that piece of paper and passing a test. We were given a letter and told to give it to the school, that they would immediately need to accommodate. Was it really the “Ruby slippers” to his educational needs? The next morning I would find out, here I come with the letter in hand.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: 504 or IEP, anxiety, Elective Mutism, family, Gifted testing, health, Mute, Selective Mutism, self healing, Shy, teaching a child with selective mustim
I think one of the areas that we relied a lot on teachers advice for was on the question of should he have the work up and qualify for an IEP or 504 plan. I heard from parents that have children with disabilities or other conditions that they were put on a 504 or IEP depending on the condition. The parents called it the “ruby slippers” to getting the educational needs met of their children. Basically it gave them the legal standing to make or in some cases force accommodation and educational tailoring with in their school for their child.
What the teachers failied to tell me when I asked about 504 or IEP, was that I was asking for the wrong accommodations. My son was very bright, he was a good student in their mind, so thier advice to me was why label him, and therefore they recommended nothing should be done. They would make thier own accompations in the class room. That is what I heard year after year, teacher after teacher. Oh no … you really don’t want to do that, don’t label him, he is too bright.
In the spectrum, I learned in most cases the IEP and 504 are for lower performing or those needing accommodation. What I finally learned is that I should of been asking for was a gifted evaluation. Why the teachers did not say anything is interesting. I learned later they don’t like to loose their brightest students out of their classroom and wanted the opportunity to teach him. But it just was not working and he was not getting the education at the right level. Now he was so bored and we where loosing his attention.
I talked with other parents to figure it out. I later learned you can be designated gifted and also have an IEP and or a 504. The issue was education path. If he was first designated gifted, they would provide the right level of education, then apply the IEP to allow accommodations. If not the accommodation would be in a lower learning room or in the class room. Those programs are to slow the process down for learning not accommodate a high learner with additional needs.
Once I asked the right questions, the test was given and with his anxiety he did terribly on the test, as I expected. Put him in a new room with a strange teacher and he would not pass any test, let alone a gifted test. So they said he does not qualify, we could reapply in a year. Dead end.
The teachers later explained that the testing for gifted given at the school was only one test format and the goals was to keep the number of children who qualify down, since they do not get the funding to the levels needed for these program. The other area is they are not equipped, nor do they want to have a mixture of a high class level of students and a child with accommodations. I think it was a fact that they would need to change the way they teach and did not desire to do that.
They did give me a clue, that there were 10 total tests that the state would recognize, the school just would not give them, they chose the hardest one to pass to keep the numbers down. Nor would they pay the $1200 to test him privately. They basically said again, if we could afford it we should try that route. If not, he would not be accommodated.
So this put us in a world of he is so advanced, but the tests that the school needs a grade on says he did not qualify …so your basically stuck.
Should we invest in the tests outside? Why would the school not offer the other tests? It lead me on another road in this long journey to figure out how to get the right education to my child that fits for him, not the school district process. I had ideas, armed with options and wanted to not let this go. I call the state education board and learned some interesting facts…..
I would ask each year the teacher if this was something that should be done for my son. Their answer was, oh you don’t want to do that. He is far too smart and you really do not want him labeled.
Now this was confusing to me. In the end we did have him tested outside at great cost and he was tested as and designated as gifted, it was needed for him to be in the right setting for a selectively mute child to excel, not what the school district dictates for main stream students. This designation put him on the correct path and he excelled. It took a lot of our effort and our money, but it was so worth it.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: delayed speach, family, generation rescue, health, inflexibility with transitions, lack of eye contact, selective mustim, self healing, shyness
I did look today at the Generation Rescue web site to see what other info could be learned. I was stunned to see the passage below that was on their web site for Generationrescue.org. As I read, I could check all of the things listed, and that I had chronicled in my blog that I saw and experienced with my son with selective mutism. I have underlined them below. This info below was written for autism, but all of them applied to my son with selective mustism. I really do not know why this would be the case, but it is. I will keep searching for answers.
Was there a detoxofication of my child that I was doing and not aware that it was of benefit. I was very focused on this diet at that time, since I felt there may be a connection. I had at the time had the homeopath rule out mercury or metals. He did have him add flax oils to his diet. Perhaps the pieces came together by accident?
This is a quote from Generationrescue.org:
| Treatment: What’s Biomedical Treatment? |
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| Childhood Neurological Disorders (NDs) are typically diagnosed by professionals with psychology and psychiatry backgrounds. Parents are often told that their children’s diagnosis is the result of genes and is psychological in nature. Typical “psychological” manifestations of these NDs in children may include delayed speech, lack of eye contact, impaired or non-present social skills, shyness, perseverative behavior (doing the same thing repeatedly), delayed gross or fine motor skills, sensory integration issues (sound and touch sensitivity, etc.), not responding to one’s name, inflexibility with transitions, and major, often unexplained, changes in mood. |
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| Yet, the physical or medical issues that our children often share are rarely noted or discussed. Typical physical manifestations of children with NDs may include food allergies and eczema, general gastrointestinal distress, constipation and diarrhea, yeast overgrowth, immune system disregulation, and sleep disturbances. Typically, proper testing would also reveal high levels of environmental toxins relative to neurotypical children. |
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: autism, Elective Mutism, family, health, Selective Mutism, self healing, Shy
I had just finished my last blog on selective mutism and my gut feel that vaccines may be ground zero, when I was checking out from my chiropractor’s appointment. As I was at the check out there was a flyer taped up on the wall that read, “Are we poisoning our kids in the name of protecting their health? ” Now this caught my attention and I asked if she would make me a copy. It was from Generation Rescue, which I know nothing about and have never heard of before. www.generationrescue.org. But it laid out the case for autism rate in 1983 of 1 in 10,000 with 10 shots required. And in 2008, 1 to 150 with 36 shots required. In small print at the bottom was a thank you to Jim Carrey and Jenny McCarthy for their support of this organization. I had just seen her book on Autism at the Barnes and Noble when I was trying to find a book on selective mutism. Could we both be on the same path for different conditions? This info caught my attention.
I wonder has anyone looked at rates of selective mutism pre or post the vaccine increase? Is there a celebrity who had or child has selective mutism who can lend a face to this condition? The flyer talked about neurodevelomental disorders. Could selective mustim be part effected by vaccines?
Perhaps the autism focus and research will lead to answers that will gain traction with selective mutism? I know that my sons tourette sydrome acts up after vaccines are given, so why would it not create the issues with selective mutism that would prevent speech?
I also spoke to a gentleman at the airport who enlightened me that the sense of smell goes directly to the back of the brain is not influenced by areas in the front part of the brain. Thus my sons heightened sense of smell would not be influenced with his language part of the brain, that was effected be the select mutism. It is all small pieces of the puzzle I am still trying to put together.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: anxiety, family, Selective Mutism, self healing, shyness, tourette syndrome, vacines
There are so many unanswered questions in my mind, Was there a link or a tie between him later developing mild tourette syndrome and his earlier experience with selective mustim? I still think that ground zero for us was the immunizations and vaccines with mercury he was given at a year old and his change in behavior once having the shot and the then lack of eye contact.
Even though the doctors said there was no tie at that time, I still think there was and that time will tell. That from that time on some sort of receptors did not develop in his brain that should of due to the shots.
The idea that the three are threaded together or some how tied as apposed to three separate issues. No one seems to have an answer or they are too afraid to look fearing law suits.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: family, health, Selective Mutism, self healing, Shy, shyness
In adding value to this blog I decided to visit my local Barnes and Nobels to see what books to add and recommend on selective mutism. There was a big table with Autism books and Autism awareness month. I thought great, they will have books to look at on this topic. When I could not find any, I asked and was told they had one. When he brought it to me, I realized that it was a fictional story that one of the characters had the disorder. No help.
I then went to look at the autism section and looked at different books. There were books on what it is, books for children, books on group activities. It was mass merchandising of autism on a large scale. I hope it gets the word out and their message spreads.
So I do not have any recommended books, first person or clinical at this point to add as resources to this blog. I will have to add them as I find them at a later date.
But it did show me that disorders are now big business. Book deals are make on them, people must be buying them, other wise they would not be available. So in the mean time, my blog is chronological. Start at the first entry and read up and you will get the full story and all the paths we took and the successful outcome we had with our son who had selective mutism.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: anxiety, elective mustim, family, health, Selective Mutism, self healing, Shy, shyness
If there was an area that we should of done better, it would be with his teachers. They experienced first hand the condition of selective mutism and even after it has been diagnosed, they did not know what to do for it. They wanted to help and were not trained how. How to help? None of us knew.
They did try, but all were within the speaking world teaching methods, which I feel are not effective. They tried various methods like flash cards, did not work for my son. They tried incentives of candy and treats, no go. We sent others into the class room to observe. No help. Came for home visits, he did not speak to her at home. We video taped it in hopes that if he saw himself it might do something. Ditto, no change.
The question is DO SOMETHING, or is it better than ignore it? For months we ignored it at the school level, working on an outside solutions. We were ill equipped to work with his teachers. I learned over many years to be well prepared. Articles in a notebook to show the teachers it was an actual condition. I always did a meeting during the morning of the first day of school. I would show up one hour early to introduce him and to talk about selective mutism and what to expect. Some of his teachers where very open and glad I had come by, others looked at it as a bother and something else they were going to have to deal within their classroom.
I could always spot those teachers since they asked about an aide. An aide??? He does not speak, he will do everything you ask except answer you or speak to you or the other students. He would not answer the aide, so what good would that do. Will you be in the class room, they would ask. I can be there as much as you like, but it will not make a difference. How can we mark his progress if he does not speak? You will have to find creative ways to interact with him.
I just did not have the words myself to describe selective mutism to them in all its aspects. Does he have behavioral issues? No. Can I or other children catch it? No. What caused it? Something in has brain is shut down in the school setting.
The questions were endless. I had very few answers that were in detail. Once the selective mutism had been resolved the conversation with the teachers were almost disbelieving that he had selective mutism. We wanted to make them the early warning system to pick up on any behavior that would indicate it was coming back. They would always report at the parent teacher meeting how well spoken he was and how smart he was. They said they would like him to participate more. More …. to us it was great that we were even having this discussion about more participation.
They were more concerned that he was finishing the school year ahead of the other children and wanted to move him ahead a grade or move him to another school for the top gifted children, They got a big resounding NO from us on both accounts. But that was the issue that would be the crux of the issues for grade 1-6. Once he has his voice back, how much change do we want him to have?
I learned a lot and if a child is one grade above the school level the school in not obligated to teach the child at their level. That is a sad fact in our school systems today. They just expand the strands of learning. Thus we had to choose in our minds between keeping in place and speaking and getting them to teach him at this level. I never thought we would have to make that choice.
What was the school was willing to do? To them he seemed fine and advanced, so they just want me to go away. We had come so far and I would not give up. So what was next?
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: Elective Mutism, family, health, Selective Mutism, self healing, Shy, shyness
Just as the woman who I worked with missed the signs with her daughter, so did we. Even as an infant, my son would not make the same kind of eye contact that his older brother was doing at the same age. We talked about it and decided he just did not like to look or focus on our face, like his older brother did. He would look focus at us and then divert his eyes or turn away. When he a little older, he had a thrusting motion with his tongue, that became a clue to us when he was in preschool that he was anxious.
Thinking back, I should not have written off that simple turn of the head. It made us think he was shy. So for the first two years, we had already made assumptions about him, we should not of. We thought about perhaps he had sight or hearing issues and had those checked out.
He had the loudest cry and piercing scream as a baby. We use to say it made us sweat when he cried. Again reassured that it was just a different child than our first and not out of the norm.
I talked and compared with other mothers. It lead me down a path to accept as normal things that should of been the first signs of anxiety or selective mutism, when you look at them in total.
When the preschool teacher came to ask us how long he was developmentally delayed, it was a shock. We were clueless, we had missed the cues we saw to give us a hint of the things to come that he did not speak in school came as a total surprise. How did we miss it? He was not delayed at all, but when he was in school without speaking he was to them.
I write this blog as a way of helping other families that may starting on the same roads that we traveled. If it helps one other family, my time writing this will have been worth it.
Filed under: Elective Mutism, Mute, Selective Mutism, alternative medicine, anxiety, family, health, self healing | Tags: family, health, Selective Mutism, self healing, shyness
It was several years later at a company picnic when a little girl came up to me and I spoke to her,but she did not speak to me. I knew her mother from another department and with the interaction I had just had with the child and what the mother said I spotted it right away as selective mutism.
The mother told me not to bother that he daughter was shy and does not speak around strangers. When I asked if this was the case a school, she said yes. I then asked what the doctor said. She said she never mentioned it to him. I asked if she knew what is was and she said know what what is?
She had no idea that her child had selective mutism, I told her what I thought it was and asked her to go on the Internet and do research and bring it with her the next time she went to the doctors and to the teachers.
It was about a month later that she came by my office and told me she could not thank me enough. That indeed that is what it was for her daughter and that now that they all knew they were all working together on her selective mutism.
Sometimes, if you suspect it, tell the mother or the father. She went on to say they suspected something, but they were too afraid to address it. They just hoped it would go away or she would out grew it.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: Elective Mutism, family, health, medicine, Selective Mutism, self healing
The potential we had hoped for to set the bar high, to have him make a leap into a first grade program with high academic and social standards was easy for him, harder for us. He excelled at the program and within that year came out of his shell as the teachers described it.
Pre school would of been a time for him to practice his verbal skills and without that time he did have some ground to make up. What we where able to find out is my son actually thought the words just did not say them. Thus it was just the act of speaking or speaking up that was needing practice.
The interaction for us as parents was harder, since we were not practiced in the ways of the competitive elementary school parent society. Actually it was a shock, since he did not make the school connections in the past. It was our first year of the social side of school that we had missed due to no one invited him or us in the past, since he did not speak due to selective mutism.
In the back of our minds over the next few years, we worried that something would trigger it and the selective mutism would come back, it did not. Were we just lucky? Was there divine intervention? Would it of happened naturally?
I now knew how to spot it early and helped another family who had no idea what was going on with their child.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: family, health, overcoming selective mutism, Selective Mutism, self healing, Shy, shyness
I got a response to those reading the blog to remind those as I said in the beginning, that this blog is a chronicle of our families journey with my son who had selective mutism. It traces all the paths we took and all the things we did and the roads we tried to help him overcome this condition. Start at the beginning of the blog entries and read to current day to get the full picture.
He had the condition of selective mutism from 2 to 5 years of age. He is now 13 and has had no sign of the condition since age 5. Read the blog entry on the “If there was ever a time to say your sorry” and the one on “Glass breaking” to find out how we had a break through and he began to speak.
Today, he is the typical mouthy a teenager as you can get. And I love every word… to his friends, all the times he is on his cell phone talking, when he talks back to a teacher…. When he talks back to me.
He loves to bargain and haggle with merchants, he loves to give presentations. He is an old soul with a wonderful way with words. His gift now is truly his words. We say when he grows up, he will be a preacher or a teacher or the best lawyer.
On vacation he told us ‘This is too much paradise”… his friends call him “The voice of reason”. His voice and his words are a wonderful thing. You can read the blog in total from bottom to top at peermentor.wordpress.com I hope this news of our success gives other families just starting this journey hope and advice that it can have a great outcome, as hard as it seem going through it.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: alternative medicine, anxiety, Elective Mutism, family, Selective Mutism, self healing, Shy, shyness
Kindergarten first day was an anxious for us as it was for him.. Actually I think he did better. We spoke to the teacher on the first day, told her of the situation and asked that she tell him ahead of time what they would be doing, watch for any anxiousness on his part and crossed our fingers. Was the selective mustim gone or would it reappear in this new school setting?
The teacher said he was quiet, but did interact and did speak to her and to another child. Good news…day one. The school year progressed and he did very well, still very cautious and somewhat shy but he was speaking and interacting. The teacher was hoping for more interaction and participation, but with all that had gone on for the past 3 years we were thrilled.
One day his teacher called in sick and he had a set back, and was very upset, but other than that, the I’m Sorry stayed verbal and so did his words. When she returned so did the words.
He completed kindergarten with flying colors. My desire was to move him into an accelerated program for first grade that the school offered. He had not been accepted on the first round. I am not sure why, but he was not, so I asked his kindergarten teacher to keep and eye out and if an opening happened, we would want to put him in this learning family class. This would be a huge leap for him to come into his own. These were the brightest children in the school and the most aggressive and highly participatory parents. I hoped that this would be the next step in having him reach his full potential.
We knew he was bright, we just did not know if the pressure of setting the bar higher would make him soar or retreat into his world of selective mutism. As I have all along this journey, I wanted the best for him and for nothing to stand-in his way. Could I expect the same from him as I could from a child with out this condition?
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: anxiety, Elective Mutism, family, health, Selective Mutism, self healing, Shy
Time did tell that his selective mutism did not return when he went back to preschool. Some aspects of his control of life did change and became complex. His need to plan the day and his sense of smell became heightened in certain situations.
Planning the day became a big deal in the house. We needed to tell him each morning exactly what was to go on that day. This seemed to give him comfort and if the day turned out to be has we described, he was fine. If the day turned out to be different and not as he would of expected, he would be very anxious and unhappy.
We dropped him off as pre school one day and the teacher got sick and a sub came in. He withdrew and cried. He came home very mad that we had not told him of the change. For years after I would tell his teachers to prepare him in advance for change, if they did not that it would cause him issues.
Another day he was put into another classroom without preparation and that was very unnerving for him. He seemed not to be able to function if the plan changed without some advance notice.
We went on a play date to his friend’s house that had played with him all those years when he did not speak. His friend was delighted he now could speak. We went to his house for the first time. The plan was for me to stay for a while and then leave, to see how he would do. I told my son the plan and he want not happy about me leaving.
We get to the friends house and they greet us. My son walks in and says, This house smells. Mom, I can’t stay, the house smells. I am embarrassed, and I tried to say, oh no there is not smells is this house. At least I could not smell anything. Our friends were horrified, as he continues to say, we have to go, this house smells. After that time, if he was anxious he would tell me it would smell, as a way to tell me he was uncomfortable.
He completed his red shirt preschool year with flying colors, speaking up and now fully participating. The teachers were so pleased with this progress. Kindergarten was now weeks away and all that made him safe and secure to speak was about to change, new school, new friends, how would that effect the fragile hope that the speaking would continue. Was his selective mutism really gone or would it return?
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: Elective Mutism, family, Selective Mutism, self healing, shyness
The school year started out with more anticipation than most. Would he speak? Would he not speak? Time would tell, if the selective mutism would morph into something else? We had given him the gift of a preschool red shirt year to find out.
The school bell rang out and so did his voice. It was just as though he had always spoken. He spoke to the children, to the teachers and even to us…at school!!!!. What a marvelous thing… we waited around to see if there would be any regression, shyness or blank face like in past years. None… OK Check… what is he doing? Did he head right for the play doe…..no…hum he was interacting with the children.?? What… interacting with the children. We were stunned. It was the light switch was on all he was totally different.
When we picked him up as school that day, we asked him how his day was? He said good, but the strangest thing.. All the kids followed me around all day in a big line? Why do you think they were doing that? They all wanted to see and hear me speak.
I smiled; it was as shocking for the children who knew him all these years to see him now speaking. They followed him around for days, like a great wise sage. There were some items that appeared over time in how he handled changed or new situtation that needed to be managed, but over all, it was so gratifying to have him speak, engaged, smiling and interacting with his teachers and his school mates.
His teachers was shocked at his language skills. They pulled me aside after the first day and said they needed to apologize to me. That I was right all along and that his was very very bright and articulate. They had now idea how advances his langue age skills really were. Since there were no tests that they gave that ever showed it.
The days turned to months and the months turned to more comfort that this was not a passing phase that would take him back to the other world of selective mutism? Or would it? Time would tell.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: Elective Mutism, family, Selective Mutism, self healing, Shy, shyness
The next morning was filled with anticipation, would he say I’m sorry again or would it be a one day exception. Would it effect positively effect his selective mutisms? We held our breath.
He came bounding down the stairs, had breakfast,… and spilled his milk. A typical morning with a 5 year old. Then the words, Mommy, I’m sorry, I’ll clean it up. My husband and I stood there stunned. What, he said it in such as normal tone, like he had spoken that word all along. From that day forward it was like a light switch had been turned on and that word Sorry was no longer an issue. Nor did he after time remember that he could not say the word Sorry. We once we realized he did not remember not speaking the word, we did not speak of it again, since we were afraid he might revert.
Preschool started next week, and the teachers had already begun to set up their room. We planned a visit to the school that week to see if it has any effect on his selective mutism. He had not spoken a word at the school for over three years.
We went into his last years teachers class room and she was so delighted to see him.. Oh,xxx how was your summer? She immediately answered; since she knew the drill. Oh I bet it was great.
He then said, Hi Miss R, I had a great summer. The teacher dropped to her knees, my husband and I cried. It was the words we had hoped for him to speak He looked at me as said, mommy what are you crying? We just could not believe our ears. Something happened when the glass broke that broke the silence.
I just sat their watching my son and his teacher on the floor, he was sitting on her lap and he was speaking full sentences to her. She reminded him about the butterfly key chain and that if he spoke she would give him more keys. She called it his key to speaking. She went to the draw and pulled out some more old keys and told him they where his. She later told us, she had practically given up and was going to give them away. My son still has those keys. It was a ground-breaking day.
But how long would it last, would he speak to the children in a new class this year. We waited for Monday for school to start overjoyed at the miraculous progress. Our selectively mute son had a break through of huge proportion.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: alternative medicine, Elective Mutism, health, selective mustim, self healing, Shy, shyness
My son looked shocked at what had happened. I calmly took him into the living room and started showing him the shards of glass and pieces of bowls. I told him if there was ever a day to say you’re sorry- this would be it. He started by spelling out S_O_R_R_Y, mommy, I know I should not have done that, mommy. His brother came in to find his clay art project that we so proudly displayed also in smashed pieces. He was not happy and his brother knew it. S-o-r-r-y , s-o-r-r-y, he spelled over and over again.
There was something in me that wanted to push the issue at this time. Perhaps if he would not speak at school, perhaps we could gain closure on the I’m sorry speak at home issue. I started by talking to him and telling him how sad I was, picking up the shards of glass and letting them fall through my hands. I kept calmly telling him that if there ever was a time to say you’re sorry this was it. An hour went on, we cried, discussed the incident, and discussed why he could not say he was sorry. This looked at though it was going to be another dead-end. My husband came in and said that I was pushing him too far and that I should stop and let it go. I did not.
Another hour went by and no progress, then just when I was about to give up… my son started to say something. In a very low tone, not in his own voice, it came out, slowly, I-I_mmmm, s-ooorrrreee in a very deep voice. What what did you say? I could hardly believe my ears; did I hear what I think I have just heard? M husband came into the room in time to hear him say again in this very deep voice and very slow as if it was difficult to get it out, I—mmmm Soorr–eee.
We were overjoyed. To hear I’m sorry, said in words, it what we had waited to hear for the past 3 and a half of his 5 years. There it was, he said it. We praised him, and asked him if he could say the same thing to his brother. His brother came in and this time he said, I’m Sorry, I broke your art project,…. it was clear and distinct now, in regular speech page and in his own voice and tone. He brother was amazed; hey mom, he said it, finally a break through.
If you ask me what I think happened, I think the trauma of breaking the crystal caused some connection in his brain to connect, that were disconnected. It was like a switch was finally connected and information was now flowing normally. But for how long, would this be a one-time event? Would it affect his selective mustim. It was late and tomorrow would tell us more.
Good night Mommy, I’m so sorry for breaking your things. It brought the biggest smile to my face in a long time. To me it was worth breaking everything we owned to have a day like that. The words I’m Sorry Mommy was a gift that was finally here.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: chiropractor, family, health, Mute, Selective Mutism, Shy
The big day arrived to seek more alternative options for selective mutism and we went to see and visit the cranial chiropractor. We arrived at the office and it looked more run down than I would expect and more like an accident treatment center. This had been a big debate to take this next step. What happened if the doctor cracked his head, like they crack your back and something happened? All sorts of concerns buzzed in our heads. How would they move his plates in his head and how did they get moved in the first place. Or do heads even have plates at his age. It was all a blurr.
We were all taken into a room, asked a series of questions, whoever we did not most the questioning as to how this works, had he done any other selective mutism cases…..well no….but it is a proven method for many symptoms like his. We hesitantly agreed to proceed.
Head x-ray, clear… we could stay in the examining room for the treatment. Quite music was put on the lights dimmed slightly and the doctor begins to rub his head like a scalp massage. A scalp massage is what we are paying all this money for……
The one thing we did notice is my son really enjoyed the light touch message. Which help us allow this to continue. At the end the doctor said he had done some adjustments and we would need to come back for a series of sessions to see results.
Results!!! Well maybe, lets see if we see an improvement and call you for another appointment. It did nothing and we never returned to the cranial chiropractor.
It was another dead end. After telling our neighbor who was a school teacher about the days events and no talking progress, she told us that the school district is mandated to provide speech therapy and pre school for children like my son and I should look into it.
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: alternative medicine, Elective Mutism, family, health, Selective Mutism, self healing, shyness
My voice is now partially back and perhaps that is the subject of today’s blog.
Since regular medicine was not working on my son with selective mutism, we started to look at Alternative Medicine Our journey out of regular medicine to hopefully find a path to his recovery. At least we hoped.
At first, it lead me to read a lot on the web site in what was known about the condition. We called and got an appointment with a homeopath who was very well referred. It again took 6 weeks to get an appointment. No insurance taken and cash paid We arrived not knowing what to expect. I was so hopeful, my husband was very hard headed and thought this path was going to be a bunch of crock. Perhaps we were both correct.
The waiting room was full and there was a room off to the side that seemed to be an area where the formulars for healing were being dispensed. Many would come to the window, they would mix up a special liquid, place it in a brown glass bottle and they would leave. Humm
We met Dr. B and he asked all the normal questions. After about 20 minutes, he said lead us to his work area and said, lets get started.
Get started, what did that mean? We went to a chair where he asked me to sit down and put clay beads around my neck. Placed a probe on my finger and asked me to hold my son. WHAT!!!
He explained that the beads would neutralize my energy and my sons energy would come through and he could register the voltage based on putting the probe in different bottles he had and come up with a diagnosis.
I was still hopeful, my husband had checked out mentally at this point. My husband looked at this a quackery, I looked at it as a chance we had to take. I was measured and tested and after 15 minutes asked us to join him in his office.
When we got in there, we asked him did he know of selective mutism. No… in my mind I said, a bad sign
He did accurately told us us our son had a respiratory issue and suggested for the selective mutism or unknown issues we were having with our son, the paths of regression hypnosis and cranial chiropractic. HUH.. What … regress my son back to a past life?… yes.. he said, or a head chiropractor. Yes correct.
What will that do? I think the plates covering his brain are pressing causing the issue. OK and who does this? A cranial chiropractor. I had never heard of such a thing.
He then gave us a whole bunch of info that was written on a paper bag and filled the bag with assorted herbs to try with this issue.
Since I did not want a child of 4 going to be regressed into a pass life of who knows what, we opted for the cranial chiropractor. It would be another 2 weeks until we could get in…
Filed under: Elective Mutism, Mute, Selective Mutism, Shy, alternative medicine, anxiety, family, health, self healing, shyness | Tags: Elective Mutism, family, health, Selective Mutism, self healing, shyness
The big day arrived and there we were going up the elevator near the local hospital to a Doctors office we had never been to. It was exciting and scary all at the same time. The waiting room was large and filled with toys. The parents sat and the children played. Well this look pretty normal to me, why is everyone else here? What would bring all these people to see a child physiologist? I was pondering it, when when a booming voice interrupted my inner voice with Mr and Mrs K , yes.. please come this way. We filled out the paper work, found out insurance did not pay and it was going to be over $250 for the first visit and $125 for each follow up.
We finally met Dr. E, she was well referred and seemed very dry. She asked a series of questions and asked us to explain what we were seeing. It sounded more like she was asking us if we were to blame, then hearing what we had to say.
She said, we will do tests and see if he has been abused? Abused?? No he is mute at school. He may have a medical condition such as brain tumour. No he is mute a school.
Have you ever dealt with this condition before Dr. E. Well I have only studied it and it is very rare. I saw it in a clinic when I was in my residency. What did you say… the woman was well in her 40’s, so 20 years ago.. my brain was about to burst.
More questions about my and my husband relationship…what does that have to do with it…his older brothers relationship, our relatives, his teachers. I was exhausted and still has not clear understanding of what was next. Next …. oh I will take your Son and do a series of test and drawings with him. You two go sit outside and leave him with me.
So we did, leave the little guy with the doc to have her do an evaluation. After it was over she returned him to us. Said said, do you know how bright he is? he is really of the charts and quite charming. He talks perfectly fine. I do not see the issue you are describing.
What… do I need to video tape it for you? I guess you will have to, since she thought we not representing the situation correctly. I jumped and and said, I will call the teacher, let her tell you what she sees. What you see and what she sees are two different children..
And thus the phone calls from teachers and us taking photos and videos to prove we where not crazy began. He still didn’t speak at school, but we where more convinced that we were not being believed.
The next meeting is in two weeks and I will give you my diagnosis. The spot light seemed more to shine on us as parents and not on the selective mutism that she could not see or find.
